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National
Family makes bucket list for 9-year-old with terminal brain tumor
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Family makes bucket list for 9-year-old with terminal brain tumor

Family plans bucket list for 9-year-old with terminal brain tumor

Family makes bucket list for 9-year-old with terminal brain tumor

The Portsmouth, New Hampshire, community is making sure a little girl with an aggressive brain tumor gets to live her life to the fullest.

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A few weeks ago, 9-year-old Ciara Brill began to have headaches, but her family thought it was nothing Motrin couldn't fix. Then on Christmas, her family noticed she had a lazy eye. It was worse the next day.

"That was definitely alarming, we talked about it and (her mother) took her to the emergency room," said Harold Brill, Ciara's father.

Following a CAT scan and MRIs, Ciara was diagnosed with a malignant brain tumor called a diffuse intrinsic pontine glioma.

"The doctor was very blunt about it. Came out and said terminal upon diagnosis," said Brill.

DIPG tumors are found in the brain stem and almost exclusively are found in children. The tumors are aggressive, difficult to treat, and affect the area of the brain that control breathing, blood pressure and heart rate. The tumors are rare: only about 300 children are diagnosed with them annually, according to Boston Children's Hospital.

Somehow, Brill had to find a way to explain what was to come to his daughter.

To ease the pain, the Brills put together a bucket list for Ciara and a family friend started a GoFundMe account to "create as much joy as possible for Ciara."

"I want to show her the world -- as much as we can," said Brill.

The bucket list gives the family something to look forward to. Brill said it helps him keep hope.

"(I) just have to for these guys," he said. "(I) want to see her smile."

The Brills are seeking a second opinion and hope to begin radiation six days a week for about a month to at least temporarily shrink the tumor.

The money from the GoFundMe account will also help the family, as the parents will be taking time off from work and there are rising medical bills.

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  • A Tulsa pastor is the second local man caught up in a federal investigation into child pornography. KRMG has confirmed Rev. Ron Robinson was arrested Thursday and taken to the Tulsa County jail. We have obtained a copy of the federal indictment, which contains details too graphic and disturbing to quote. It includes references to Robinson’s fantasies of raping and even murdering children. The pornography being shared via the online app which investigators allege Robinson was watching and commenting on included depictions of adults having sex with children as young as three years old. Most of the depictions were homosexual in nature, involving adult men engaged in sex with young boys, or boys engages in sexual acts with one another. Robinson works at Phillips Seminary in Tulsa, where he is listed as Director of Denominational Formation (Unitarian Universalist) and Adjunct Instructor of Practical Theology. According to the website, he “was ordained by All Souls Unitarian Church in Tulsa in 2002 and is Executive Director of the national organization, Unitarian Universalist Christian Fellowship, and Executive Director of the Tulsa northside renewal organization, A Third Place Community Foundation, created by the local missional community he planted called The Welcome Table.” Robinson also served as pastor for “The Welcome Table,” which is described on its website as a “non-creedal missional community in a progressive ecumenical universalist christian way.”
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